Wednesday, October 3, 2007

Spinal Cord Injury Walk 2007


The walk was a great success! I would like to thank everyone that came out to participate, and all of sponsors and volunteers that made it possible.

We met a lot of new people, got some exercise, had some good food, won some awesome items donated by local businesses and artists, listened to some good music, and raised just over $13,000. When we combine that with prepaid sponsors and do some more math, that's around $15,000 to split three ways. The Northwest Indiana Spinal Cord Injury Group, Unite 2 Fight Paralysis, and paralysis research will all benefit from everyone's hard work and cooperation.

Here are some pictures from Mike Gard and a few from Jennifer Aitchison. Check back frequently for future postings, and meeting dates and times.

Thanks,

Joe




















































Sunday, August 26, 2007

Sci-Step

In the third week of August Ben and I took advantage of the free week that Sci-Step offers. I thought it was an awesome experience.

Sci-Step describes their therapy program as an "Activity based recovery program"

"In the past, rehabilitation after a spinal cord injury focused on adaptation to the injury. It was believed that the possibility of improvement would occur during the first six months and that recovery more than two years after an injury was unattainable.

Over the last few years, experts committed to the philosophy that with the right combination of therapies, recovery is possible - even months or years after an injury, helped changed the future for individuals suffering from a spinal cord injury.

SCI-Step offers these proven techniques to acute and chronic spinal cord injuries, allowing the ability to recover independence, movement and sensation, as well as, attain improved health and quality of life." Sci-Step.com

bullet Functional Electrical Stimulation
bullet Gait Training
bullet Weight Bearing
bullet Cardiovascular Conditioning
bullet Orthodic Training
bullet Isolated Muscle Movements
bullet Strength Training
bullet Aquatic Therapy
bullet Acupuncture
bullet Massage Therapy
bullet Nutrition Counseling

We got there on Sunday and were very impressed by the housing that Sci-Step provides. There was a note on the table that read, "Welcome Joe and Ben. See you in the morning." We had a two bedroom apartment with all the comforts of home. On top of that, the complex has a pool, computer center, and a small movie theater that can be reserved.

Now the therapy...

We got to Sci-Step in the morning, finished some paper work and got right to work. The physical evaluation was almost like a workout for me. Matt stretched and tested the strength in my legs and then asked me to demonstrate my walking.

A little history about my function... I have a C6/7 incomplete spinal cord injury. This means that I have some sensation and motor function below my injury level. I can stand and even walk short distances with a walker. Unfortunately for me this also means that I have uncontrollable muscle spasms that make my legs shake, bounce and even contort into strange and painful positions. I take a fair amount of medications to combat that on a daily basis.

Up until this point I had been able to walk about 30 feet at a time with a walker, then I was done. That's about what I did. Then Matt says that we are going to try wall squats and gets one of those exercise balls. With Matt's help I did 20 wall squats and made it back to my chair. Now I 'm thinking that we're probably done. Nope, it's time to ride the "Ergys2" FES (functional electrical stimulation) bicycle. They put 12 pads on my legs and rear, set me up in the bike, and turned on the electrical stimulation. I have enough sensation that I could only handle an E-stim level of 30. That makes me "hyper sensitive". It takes a level of about 130 to cause a contraction strong enough to move the large leg muscles, but even at 30 there was a tingly zapping feeling that helped me initiate a muscle contraction. I rode this bike for an hour, helping my legs move the peddles around. I liked the RTI FES bike a little better. It works off of the same theories, but has a motor to help your legs around when your muscles fatigue. Now I was done. What a first day. My lower back, glutes, and legs felt like they were on fire. Interestingly enough I almost forgot to take my meds. Usually I can tell time by the way that my body feels and how soon I'm supposed to take my meds. This ended up being a theme for the week. My muscles were so relaxed that I didn't feel like I really needed my antispasmodic meds.

Our days in Mason, OH went just like that. We would get up, work out for three hours, eat lunch, head back to the apartment, and I would have to lay down for a while. Later we got the chance to enjoy the pool in the apartment complex.

My experience at Sci-Step showed me that I could control my spasms and strengthen my muscles at the same time, if I had the resources. I almost forgot... It wasn't all work and no fun. On Wednesday I got my first acupuncture treatment and on Thursday I got my first full body massage.

Maybe I can get Ben to comment on his experience at Sci-Step...?

jOE

Tuesday, August 7, 2007

Adaptive water ski clinic, Twin Lakes WI

There was a pretty good turn out for the clinic. I went on August 1st and 2nd. It was a blast. The clinic was open to kids of all abilities and ages. Adaptive Adventures and Dreams For Kids also had a hand cycle vendor there and kayaks to try.

Water skiing is one of my favorite things to do since my injury, but there were a few people that have expressed concerns about how safe it is. The people organizing this clinic have done so for 12 years and take every safety precaution necessary. For beginners or people with little to no hand function or trunk control. They have a sit ski with outriggers. This makes it nearly impossible to tip over.

They also have a "chase boat", that follows all of the skiers. This boat has volunteers that are ready to assist in any way needed. For questions or a more detailed description, email or call. I will leave you with a few more pictures from the event.


Joe

September Meeting

Our September meeting will be on August 25th. The first weekend in September is Labor Day Weekend and many people already have plans.

We will have the meeting at my house, 1pm. Email nwiscig@gmail.com or call 219-531-0055 for directions or more information.

Thanks,

Joe

Friday, July 20, 2007

Spinal Cord Injury Walk 2007

Align Center
Walk Those Who Can't


Spinal Cord Injury Walk 2007
At the Old Fairgrounds Park/Butterfield Pavilion
704 McCord Rd, Valparaiso, Indiana
September 29, 2007, Noon-5pm




  • Noon- turn in pledge envelopes/hand out shirts
  • 1pm- 5k/3.1 mile fitness walk (that’s only 4 times around the track)
  • 3pm- Information, food, music, raffles and a silent auction in Butterfield Pavilion



*Proceeds are to benefit Unite 2 Fight Paralysis, paralysis research, and the Northwest Indiana Spinal Cord Injury Group.



The Northwest Indiana Spinal Cord Injury Group: Our mission is to improve the quality of life for those with spinal cord injuries living in Northwest Indiana, through education, advocacy, peer support, and recreational outings. www.nwiscig.blogspot.com


A few spinal cord injury facts…

  • Every 41 minutes, another American sustains a spinal cord injury resulting in paralysis. This translates to an estimated 11,000 new injuries annually.
  • The average age at injury is 38, with 56% of all injuries occurring between the ages of 16 and 35. Young adults reaching the peak of their earnings potential.
  • In addition to paralysis, secondary conditions resulting from a spinal cord injury include compromised respiratory, bowel, bladder and sexual function as well as chronic urinary tract infections and pressure sores.
  • The estimated annual direct costs of care for Americans living with paralysis due to spinal cord injury are $15 billion. One of the costliest conditions in our country.
  • Spinal cord injury knows no boundaries. In a split second it could happen to you, a family member, friend, or neighbor.



Sources: (1) Spinal Cord Injury Information Center, http://www.spinalcord.uab.edu/
(2) Care Cure; www.sciwire.com


For more information email nwiscig@gmail.com
or call 219-531-0055

Tuesday, July 10, 2007

Rally for the Cure: Chicago



Rally Hits the Road: Chicago
Sunday, September 9, 5:00 p.m.
Navy Pier, Grand Ballroom


Featuring

Second City Comedy and Special Guests


Honoring

Sam Schmidt, IRL Race Car Driver

Dr. Jack Kessler, Northwestern University,

Dr. Wise Young, Rutgers University


2:30- 5:00 p.m.
Update on spinal cord injury research
Presentations by Dr. Jack Kessler and Dr. Wise Young.

5:00- 7:30 p.m.

Hors D’ Oeuvres- Silent Auction- Awards- 2nd City Performance

Tickets: $125/ person


Attire: Business to Cocktail.


Directions to Navy Pier: http://www.navypier.com/



All Proceeds to Benefit Spinal Cord Injury Research

Striving From Laboratory towards Human Application



For more information contact: Next Steps SCI Rehab

To purchase tickets online or sponsor the event

708.467.0657 nextsteps1@aol.com




Contributions are tax-deductible per IRS codes

Sunday, July 8, 2007

One week of free physical therapy at SCI-Step


They are a facility where determined individuals can concentrate on their recovery using the most advanced equipment combined with crucial rehabilitative components and the knowledge of dedicated medical professionals specializing in physiatry, physical therapy and exercise physiology.




SCI-Step is now offering a free trial weel of physical therapy, with housing, to those with spinal cord injuries. The staff is very friendly and accomodating. Located in Mason, Ohio , they are close enough to make the trip worthwhile.

Below is a quote from the SCI-Step website:

"Being in DC and meeting all the wonderful individuals gave me the inspiration to do more. We are now offering one week at no cost to anyone interested in trying out our program. We want everyone with an SCI to have the ability to experience all the beneficial components necessary for SCI recovery and health maintenance. Whether you come for a week or decide to stay longer, we want to help in any way that we can. For more information and to receive an application, please email me at mbrock@sci-step.com.
Already had a trial? We would love to have you here again!" -Michele Brock, Sci-Step.com