Showing posts with label Meetings. Show all posts
Showing posts with label Meetings. Show all posts

Sunday, February 20, 2011

March Meeting - date change and more...

Hello Everyone,

The date of our next meeting has been changed to:

Saturday, March 5, 2011
1:00 pm at
Gelsosomo's Pizza
2605 LaPorte Ave
Valparaiso IN
477-4255
map | driving directions

*Please RSVP for the meeting. Hope to see you there!

The date of our March meeting has been moved due to the fact that three members of the Northwest Indiana Spinal Cord Injury Group have started playing sled hockey with the RIC Blackhawks and there is a scrimmage scheduled for the RIC Blackhawks to play GLASA’s Falcons sled hockey team on Sunday, March 6th and March 13th from 3:15pm – 5:30pm at the Hot Shot rink in Lake Bluff, IL.

Gary and Paul have been going to practices for a while now and I just started. If you are free and interested in supporting the fellow NWI members in their Sled Hockey endeavors, please feel free to ask one of us for more information.

To learn more about RIC Blackhawk Sled Hockey...


--------------------------------------
*Hopefully those members who took part in the adaptive ski trips with Adaptive Adventures will be in attendance to regale us with their tails of adventure, as well.
--------------------------------------

A message from Kim...

My friend Drew and his band This Last Dance are having a FREE show in Michigan City and he wants us to attend!

March 3rd, 10pm
Ryan's Irish Pub
401 Franklin St
Michigan City, IN

It's a pretty open bar, but if we need to, Drew said that we can sit to the side where they will be. They want to do fundraisers for us so this is a great way to find out what their music sounds like. I think they're awesome! Hope to see you all there!


Thursday, February 3, 2011

February Meeting

Hello Everyone,

I hope that you have all made it through the Blizzard of 2011 and have gotten yourselves dug out by now. This is just a reminder that the February meeting of the Northwest Indiana Spinal Cord Injury Group will be:
Sunday, February 6, 2011
1:00 pm at
Gelsosomo's Pizza
2605 LaPorte Ave
Valparaiso IN
477-4255
map | driving directions

Bring your Valentine out for some pizza...
Please RSVP if possible... Hope to see you there!

Monday, January 24, 2011

Goodbye 2010, Hello 2011!

Hello Everyone,

2010 seemed like a busy year for some, if not most of us. We have a couple of new college graduates, some of us took adaptive sailing lessons, some of us have a new pool, and still others have started playing sled hockey. If you have learned something new or picked up a new hobby or sport that you'd like to share with everyone, let me know. I'd love to send an email out and post about it on nwiscig.blogspot.com. We had a great turnout for the Spinal Cord Injury Walk this year as well. Just over 120 people were in attendance raising over $6000. We donated $2000 of it to Unite 2 Fight Paralysis, and $2000 to research facility committed to curing paralysis
It seems that we've lost a couple of group members and their families to the beautiful Denver Colorado area. I can't wait to go visit. The up side to wheelchair friends moving across the country is that you know you have a wheelchair accessible place to visit when you get a chance. Or at least one can hold out hope for that being the case.
For those of you who are sticking it out in Northwest Indiana, we are planning to stay just as busy in the upcoming year. We should be able to look forward to local kayak/canoe outings along with the possibility of more adaptive sailing, adaptive scuba diving, adaptive water skiing, and handcycle rides. If you have any other ideas, let me know. We are open to suggestions.
These are the tentative dates for the NWI SCI Group meeting for the rest of the year. We will try to send out a reminder email every couple of weeks. If anyone wishes to receive any other form of reminder let us know how we can accommodate you.
Sunday, February 6,2011
Sunday, March 6, 2011
Sunday, April 3, 2011
Sunday, May 1, 2011
Sunday, June 5, 2011
Sunday, July 10, 2011*
Sunday, August 7, 2011
Sunday, September 11, 2011*
Sunday, October 2, 2011
Sunday, November 6, 2011
Sunday, December 4, 2011
*Denotes 2nd Sunday of the month due to holiday weekend.

Check back to see what's going on and what's gone on...

Joe White

Thursday, August 26, 2010

Spinal Cord Injury Walk 2010




Butterfield Family Pavilion/Fairgrounds Park
704 McCord Rd, Valparaiso, IN 46385

Please preregister at www.sciwalk.info

Schedule of Events

12pm - Registration/shirt pick up
1pm - 5K/3.1 mile Fitness Walk and Roll
2pm - FOOD, MUSIC, RAFFLES, SILENT AUCTION, and MORE
...

Proceeds to benefit the Northwest Indiana Spinal Cord Injury Group

Our Mission is, to improve the quality of life for those with spinal cord injuries, living in Northwest Indiana; through education, advocacy, peer support, and recreational outings.


Preregister by Monday September 13, 2010 to guarantee your shirt...


Wednesday, July 28, 2010

August Meeting and more...

August is almost here and we hare having this month's meeting on Sunday, August 1st at my house Cookout Style.

I will supply the hot dogs and hamburgers, please feel free to bring a dish and tasty beverage of your choice. It promises to be a good time (weather permitting).

Please RSVP, so we know how many to expect.
Sunday, August 1st, 2010
Joe's House
1pm-?
1052 Joliet Rd
Valparaiso, IN 46383

Park across the street at McDaniels. Hope to see you there.
A few dates to save...

Spinal Cord Injury Walk - Sunday, September 26, 2010

Working 2 Walk, Science Symposium
, Phoenix, AZ - November 11th -13th, 2010
(We are working on a possible fund raiser that would include a Grand Canyon hike immediately following Working 2 Walk this fall, please let me know if you are interested in attending one or both.)


Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Friday, July 2, 2010

July Meeting and more...

Hello all,

July is upon us and we hare having this month's meeting on Sunday, July 11th as not to compete with everyone's 4th of July Holiday plans this weekend.

Please RSVP, so we know how many to expect.
Sunday, July 11th, 2010
Gelsosomo's Pizzeria
1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

Hope to see you there.
A few dates to save...

Spinal Cord Injury Walk, Valparaiso, IN - Sunday, September 26, 2010

Working 2 Walk, Science Symposium
, Phoenix, AZ - November 11th -13th, 2010
(We are working on a possible fund raiser that would include a Grand Canyon hike immediately following Working 2 Walk this fall, please let me know if you are interested in attending one or both.)


Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Wednesday, March 31, 2010

May Meeting and More

Hello all,

We will be meeting again on Saturday, March 6. Please email an RSVP and come on out for some free pizza and good company.

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions


Hope to see you there.

May's meeting will be Sunday, May 2nd... location TBA.

The following information was sent to me regarding current Spinal Cord Injury Research. Contact nwiscig@gmail for flyer attachments that can be printed as well.



----------------------------------------------------------

This is a SCI science summary prepared by Chris Connolly, Dennis Connolly, and Jon O'Connor.
Please see the attached SCI research information which updates the progress of the best researchers and independant publicly-held companies.

#1: CDRF history of spinal cord research (then & now). See ThenAndNow_newsletter1.pdf

#2: Reeve Irvine Center of primate research with Dr. Zhigang. This published and peer-reviewed nerve regeneration study is the first of its kind. The fact this is being done in a primate model is a big step from working with rats since the primate nervous system is complex and similar to ours. See ReeveIrvinePublication_newsletter1.pdf

#3: Dr. Tuszynski of UCSD who is working with chronically injured primates utilizing a combination treatment of bone marrow stem cell and growth-promoting proteins. See Tuszynski_newsletter1.pdf and Sci Res&Bioeng_newsletter1.pdf

#4: Dr. Karimi
Dr. Karimiof Toronto Canada is working on a combinational strategy for neural repair after chronic SCI. See Karimi_newsletter1.pdf

#5: Dr. Wise Young
Dr. Young is currently conducting clinical trials in China investigating the efficacy of umbilical cord blood transplants in the treatment of spinal cord injury.
Dr. Young has also been working with other leading neurosurgeons and directors of rehabilitation from across the US as well as two US companies to develop protocols for US-based human clinical trials. Preparations are being made for US Phase II trials to be initiated which will be the first human clinical trials for people with chronic injuries. These trials will help to asses the safety, feasibility and efficacy.

#6: Dr. Stephen Davies
Dr. Davies has been researching intensely for the last year plus and is currently peer-reviewing some new findings before making them public.
Dr. Davies' research focuses specifically on "1). Overcoming the effects of axon growth inhibitors found at sites of injury and throughout the environment of the injured adult central nervous system, 2) Development of glial restricted precursor derived astrocyte (GDA) technologies to generate specific types of astrocyte glia that are suitable for repairing the injured or diseased spinal cord and brain."

#7 Dr. Kerr
Dr. Kerr is currently working at Biogen, which is in Cambridge. He is also at Harvard. He has recently left John Hopkins.

Publicly held companies to keep an eye on include:

#1: Geron - out of Irvine, CA; this company has a scheduled Phase 1 human trial for the third quarter of 2010 utilizing stem cells. Hopefully this will move forward; the FDA cancelled their last scheduled trial.

#2: Acorda Therapeutics - Acorda is a company based out of New York. Acorda focuses on SCI and MS predominantly. While they have some commercial stage therapies currently available for MS they are in the R&D and pre-clinical stage with a couple of therapies targeted at SCI.
#3: In Vivo Therapeutics; this company is based out of Boston and is currently petitioning the FDA for an acute human SCI trial for late 2010 or early 2011. Keep an eye on this one, very strong team.

Wednesday, March 24, 2010

Working 2 Walk 2010




Plan to join us in Phoenix for the 5th Annual Working 2 Walk Science & Advocacy Symposium, November 11-13, 2010.
Featuring the latest research news from our leading scientists, hands-on advocacy workshops, and community networking opportunities, W2W is a unique event that you won't want to miss.


After 3 years in Washington, DC, and our first regional event last year in Chicago, this is our first visit to the West Coast. We are excited to meet a new group of advocates and share the Working 2 Walk experience. In the words of a previous attendee,

"Thank you so much for the opportunity to attend "Working 2 Walk. I enjoyed seeing the new research, networking with attendees, and speaking one on one with lead scientists. The experience was invaluable."


Our venue for 2010is the Phoenix Airport Marriott, and our co-host is The Craig H. Neilsen Foundation. The Foundation and Unite 2 Fight Paralysis share a common mission to find a cure for spinal cord injury, and we are proud to join as partners in presenting Working 2 Walk 2010.


This will be an exciting year in the world of paralysis research. Several promising therapies should move to human clinical trials while laboratory breakthroughs continue around the world. We will be sharing the very latest and most accurate reports in Phoenix. For more information and event details as they become available, visit our Working 2 Walk web page.

Over the next few weeks
we will be upgrading our website to improve the visitor experience. Navigation, communications, event registration, and payment processing will all be enhanced, and we hope you enjoy the changes. The transition should be seamless for viewers, but please forgive any unexpected down time that might occur.

Wednesday, March 3, 2010

March Meeting and more...

Hello all,

We will be meeting again on Saturday, March 6. Please email an RSVP and come on out for some free pizza and good company.

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions


Hope to see you there.

  • If you're involved in any SCI related sports or hobbies, we'd like to hear about it.

  • If you have a job or go to school, we'd like to hear more about that too.

  • Please take the time to help us update our files by emailing the completed the questionnaire below?
___________________________________________


It's that time of year again. I am in the process of finding and updating contact information, and I thought I would throw in a little survey as well. Please reply with the missing information as soon as possible.

Name:

Address:

Phone:

Alternative email:

Your affiliation with SCIs or the NWI SCI Group:

Injury Level
:

Injury Date:

Injury Cause:

Family members:

Do you have a degree? If so, in what/Graduation date?

Do you work? If so, where/job description/how long?

What are some of your hobbies or interests?

Do you or have you participated in any SCI adaptive sports or activities? If so, what/where?

Do you or have you participated in any rehab programs after your acute rehab hospital stay
? If so, where/when?

Do you or have you attended any NWI SCI Group meetings? If so, what was/is your impression?

Do you or have you attended a NWI SCI Walk? If so, what was/is your impression?




Thank you for participating in this contact info update and survey. Please remember to contact us with any interesting, fun, educational, or exciting personal or spinal cord injury related news so we can pass it on to the rest of the group. We, as people with spinal cord injuries, are a rather sizable hidden minority in the local community and in the country. The more resources and networking connections we have, the better equipped we are to deal with all that life has in store for us. Please remember to check out www.nwiscig.blogspot.com for more information about the group and activities of the group.


Thank you for your time and consideration,


Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Monday, February 1, 2010

February Meeting

Hello all,

We will be meeting again on Saturday, February 6. Please email an RSVP and come on out for some free pizza and good company. We will be discussing ideas for fundraisers, and activities for later this year.

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions


Hope to see you there.

Monday, January 4, 2010

January 2010 Meeting

Hello all,

We will be getting together again for a post holiday meeting on Saturday, January 9th at...

Gary and Heidi's House

(Email nwiscig@gmail.com or call 219-531-0055 for directions)

I look forward to seeing you all again and hearing how you've all been for the past couple of months. This month will be a post holiday carry-in meeting. I will be supplying a spiral cut ham, but we need your help to truly make it a success. Please reply to all if you are willing to bring a side dish or desert. A big thanks goes out to Gary and Heidi for hosting and any one else who contributes.

We would like to get an idea of where the group is heading and what there is to do this year as far as activities, outings and fund raising opportunities, so bring your imaginations and your appetites this month.

See ya soon,

Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Thursday, December 3, 2009

December Meeting

This month our meeting will be Saturday December 5th, 1:00 p.m. at
Pepe's of Merrillville
8011 Broadway
Merrillville IN 46410
29-769-7191
map/directions
Conveniently located near Westfield/Southlake Mall (shopping traffic ).

Thursday, November 5, 2009

November Meeting

This month we'll be going on the road

We'll be meeting:


Saturday, November 7th
1:00 p.m.
GELSOSOMO'S PIZZERIA
5184 N. Franklin St
Michigan City IN


Hope to you all there, especially all of our LaPorte County friends.

We're looking to go to Lake County soon, any suggestions where will be greatly appreciated.

Saturday, October 17, 2009

Hello everyone, Happy Halloween.


This month we'll be going on the road


We'll be meeting:





Saturday, November 7th


1:00 p.m.





GELSOSOMO'S PIZZERIA





5184 N. Franklin St


Michigan City IN











Hope to you all there, especially all of our LaPorte County friends


We're looking to go to Lake County soon, any suggestions where will be greatly appreciated.

Monday, August 24, 2009

September Meeting

Hello all,

We will be meeting again on Saturday, September 5th at...

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions


Hope to see you there.

Saturday, July 18, 2009

August Meeting

Hello all,

We will be meeting again on Saturday, August 1st at...

Gary and Heidi's House

1pm-? (Featuring Lisa Sullivan's pork tacos)

Please call or email for directions

Hope to see you there.

Thursday, April 30, 2009

May Meeting

Hello all,

We will be meeting again on Saturday, May 2nd at...

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions


Hope to see you there.

Tuesday, January 27, 2009

February Meeting

Hello all,

I hope everyone had a great holiday season. There is no doubt that most of us have settled back into the daily grind of life. Over the past few months, a few of us have gone to the Rehab Institute of Chicago for their "Second Look Program". Some have taken up new hobbies like scuba diving or gone on trips. Still others have gotten engaged, started school again, or started new careers. Hopefully we can all get together for some food, some stories, and good times.

It has been requested that our next meeting be in Laporte County. I figured why not?

So our February meeting will be on Saturday February 7th, 2009 at 1pm at...


1pm-?
2148 N Karwick Road, Michigan City, IN 46360
(219) 879-4404
(219) 879-9489 (fax)

This is our first time meeting at the Hacienda, so please RSVP as soon as possible so I can call the restaurant and reserve the space needed.

See ya there.

Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Tuesday, December 9, 2008

December's Meeting

We will be meeting on Saturday, December 13th, 4pm at...

Kelsey's Steak House

2300 Morthland Drive
Valparaiso, IN 46383

(219) 465-4022

map

I am excited about this one... a little change is god sometimes.
It's our way of saying thank you for the hard work and/or Happy Holidays!

I need to have a head count for the reservation by Friday,
so if everyone could RSVP as soon as possible that would be great.

I hope to hear from you soon and see you on Saturday!

Joe White
Northwest Indiana Spinal Cord Injury Group
219-531-0055
nwiscig.blogspot.com

Friday, July 25, 2008

August meeting and more

We will be meeting again on Saturday, August 2nd at...

Gelsosomo's Pizzeria

1pm-?
2605 Laporte Avenue
Valparaiso, IN 46383

map | driving directions

This month we will be eating free pizza supplied by the Northwest Indiana Spinal Cord Injury Group and discussing the details of the Spinal Cord Injury Walk 2008. I have many flyers for everyone to hand out for each event and some Walk brochures so anyone interested can start getting donations. We still need as many business sponsors as we can get along with donated items for silent auction and raffle.

The Screening of Christopher Reeve: Hope In Motion on July 20 attracted 50 people. I consider that a success. We rented a theater with 150 seats, so there was plenty of room for more people. As I sat there looking across the crowd, I thought this is a bigger crowd than I could fit in in my living room. Everyone learned a lot and enjoyed it so much that when Part 2 started unexpectedly they just sat quietly and kept watching until the final credits rolled. It was perfect timing, because the theater had to be cleaned for the next movie.

Remember...

August 3rd at 2 pm
MAPPING STEM CELL RESEARCH : Terra Incognita… Trailer

This film puts a human face on this controversial subject. When neurologist Dr. Jack Kessler's daughter injured her spine in a skiing accident, he turned his energies toward finding a method to repair damaged spinal cords, re-focusing his research on developing a therapy using embryonic stem cells to regenerate the damaged parts of the nervous system. His research has taken him into a politically very sensitive area in which Catholic and fundamentalist Christian views about the beginning of life exert a powerful influence.

I hope to see as many of you as possible next weekend.

Joe